Archive for the Some common Treatmets Category

Non-Narcotic Pain Management

Posted in Some common Treatmets on June 4, 2008 by icangel

****Like always I am not a medical professional. All medication information listed here is from my own personal experience or knowlege. Some information is also from the ICN network web site. Never take a medication prescription or otherwise without consulting your DR and or they are monitoring the medication use. It puts me at ease to always say this disclaimer but especially when talking about medications. This information is to only be used for general knowlege and not for the consumption of any medication without a DR******


I have known for quite a while about the management of pain with non-narcotic medications but up until the past 6 months, never needed to use anything more than atarax(hydroxazine) and pyridim along side my extended release medication.  So I thought due to my recent need for one I would post a bunch that I knew of. I’m sure there are handfuls of medications they have found to improve chronic pain but I honestly only know of the ones my DR and I have spoken about. 

Remember I’m not a medical professional these are only to be used for general knowlege NOT without a DR.

Of course the favorite of Dr’s who treat IC…


This medication is an antihistamine and is also used in treating mild anxiety. It effects mast cell degranulation which is thought to contribute to IC symptoms. It can help to decrease night time voiding. daytime frequency and decrease pain.

I personally really like this medication but it can make you drowsy so it can take a bit of time to adjust. I say worth the wait and extra naps!

An oldie but a goodie is Pyridim:

Which is uaually used to treat the pain and burning sensation that accompanies UTI’s. This is the medication that turns Urine orange. It is good at helping to keep bladder spasms and urethra pain with IC controlled during a flare or particularly bad day.

Although this is non narcotic, I believe there is a pyridim which does include a sedative. Dont qoute me on that. It’s what I have heard as I have never tried it.

Tricyclic Anti-Depressants:

These medicines when being used for IC are not being used to treat depression. The side effects of these medications may actually be beneficial to us IC’ers.  There used in smaller amounts to treat pain and work by blocking the bladder pain. They dont know how it works exactly.  These medicines can

relaz the bladder and dcrease the severity of bladder spasms, cause an antihistamine property with the sedating side effect of the medicine, delay the desire to urinate and block certain nuerotransmitters which cause the brain to disregard pain signals.

Then there are options like Anticonvulsants

Anticonvulsants have been used for pain for a long time. There said to help relieve nueropathic pain(nerve pain) While some anticonvulsants arent narcotic other like Klonopin are.

I have tried Topamax but had a bit of an unplesant side effect when my eye lids began to spasm. Not fatal but not really something you can handle for more than a few seconds at a time.

There is some information pertaining to muscle relaxants, but not the type I was expecting to see. I expected to see something like Soma. The listed medications were more like Atavan and valium. I have never tried anything like Soma for my pain. The bladder is a muscle.  I do wonder what a muscle relaxant like soma would do for IC.  I’ll try to research that more.

These are the medications that I know of that are non-narcotic and must be prescribed by a DR. There are some others listed on the ICN network web site where I got all the exact information for these meds but I am not familiar with them at all so will wait to learn a bit more before I add them.

I also will post some of the over the counter medication available which is known to help IC symptoms.



to perscribe or not perscribe…

Posted in Some common Treatmets on January 10, 2008 by icangel

Note: I am not a medical professional. Any information in my blog is from  my own experiences and personal opinions as an IC patient.  It is not ment to replace medical advice from you Dr.

 Still in toady’s world of ipods and directTV, where you never have to leave your house but have all your needs met through a simple click of your mouse, there are people unable to leave there house due to pain that can and should be treated.  It seems almost barbaric that people with real chronic medical conditions are left to suffer alone. 

 Whether afraid of prescribing a potentially addictive medication or the belief that the suffers pain is not bad enough, some Dr.’s have refused that avenue of treatment to IC patients.  Some in the Medical profession still view pain management for non-malignant(pain not due to cancer) unnecessary.  And although there are many oral pain medications that are not opioids, they unfortunately are not successful for everyone.

The advocates and supporters of certain non-malignant pain conditions have already been able to make great strides in the area of pain management, yet there are still a number of suicides each year by those lest helpless and alone in pain. 

I do not advocate blindly prescribing opioid medications or any narcotics for that matter.  But I do think that those with a real diagnosable condition requiring the management of pain when all other treatment options fail, should be treated with the same seriousness as pain stemming from a malignant condition.

“pain is a more terrible lord of mankind than even death itself”-Albert Schweitzer

The professional research is out there.  The potential risks versus the potential benefits.  Yet there is a very large and sometimes ignored fact.  That those taking opiates for the use of altering there mental state are attempting to run from life while those taking opiates for severe chronic pain such as IC  are trying to run back into life.  And for those two very different reasons the chemical reaction experienced in the brain is a very different one for the chronic pain sufferer.  When used properly, the risk of addiction to an opioid medication is very low.  And between risk and benefit, that fact should not be ignored. 

With that said, do I believe opioid pain medication should then be doled out without the risks being well at the forefront of the mind? Absolutely not.  I believe all medications in that category should be strictly monitored by either the prescribing  physician or pain management specialist.  And that the least amount of medication that  gives the most benefit be prescribed. 

But above all instead of asking “why should I prescribe opioid medicine for this person?” Dr.’s should be asking themselves “why should I leave this person in pain?” When viewed from the perspective of those that needlessly suffer on a daily basis, the benefits outweigh  the risks tenfold.

For a more in-depth look at what has and is being done for today’s chronic IC pain sufferers visit

Heparin Installments

Posted in Some common Treatmets on January 9, 2008 by icangel

So after two years of flip flopping between being active and being in bed, I’m finally going to be given Heparin Installments into my bladder. These past few months the pain and burning has been creeping up until it has all but over powered my medication to help the pain. 

   My urologist explained that he will be inserting a catheter into my bladder through my urethra(ouch!!!) and installing the heparin.  I am supposed to hold it for as long as I can, which I’m projecting to be, at my best, 15 minutes!.  Then letting it out.  He explained that I will have to come into the office 2-3 times a week for these installments in order to possibly build a mucus layer to protect my bladder wall. Although it could take up to 7 months, I’m crossing my fingers iy will be successful in lowering my pain to the level of a 2 or 3 without oral medication.

He said after some time he’ll teach me to do it myself at home.  Uh-wait just a second…you want me to do what? I can barely wipe myself without wanting to cry and I’m supposed to insert a catheter through my ohhh so sensitive urethra all the way into my bladder????????? I’d have better luck pulling my own wisdom teeth with any drugs!

So here I am trying to train my bladder to hold my pee in for at least 10 minutes, which isn’t very pretty.   and begging the powers that be that when I’m Cathed I wont want to throw up all over my Uro from the pain. 

Here’s to crossing my fingers…