Archive for June, 2008

The diffrence the internet can make

Posted in Daily issues, Uncategorized on June 15, 2008 by icangel

For the past few years alot of people have had to listen to me complain about the continued rise of technology doing alot of nothing.  Looking at those rants from the perpective of a daily internet user, I can see all my technology issues stemmed from the medical field.  The over used example of putting a man on the moon has been a favorite of mine.  There are people living on this very earth who have stepped onto a different planet and been able to feel our worlds advances beneth there feet.  Yet no one can fix my bladder.  When you think of modern day technology, all we can do and all that is on the horizon, it is popusterous that medical advances are unable to repair or reverse peoples suffering. That view of course leads right to possible spiritual or religious reasons for suffering. But although I often vere off topic and end up losing place of my origional point, I may defenitly add my probable spiritual reasons in another post.  But then there are all those PC views and topics I hate to avoid but have been so wisley taught to keep to myself.  I ask…whats the fun of keeping quite in my own blog. 

At least I havent sufferend long enough or become bitter enough as to start thinking consiracy theories…Since meeting a variety of different people who have been in pain for decades, many have become bitter to medical care and start to believe that there DR’s are only out for money and could care less as to fix the problem…presribing medication for pain brings in more money. I dont buy it…Yet.



Non-Narcotic Pain Management

Posted in Some common Treatmets on June 4, 2008 by icangel

****Like always I am not a medical professional. All medication information listed here is from my own personal experience or knowlege. Some information is also from the ICN network web site. Never take a medication prescription or otherwise without consulting your DR and or they are monitoring the medication use. It puts me at ease to always say this disclaimer but especially when talking about medications. This information is to only be used for general knowlege and not for the consumption of any medication without a DR******


I have known for quite a while about the management of pain with non-narcotic medications but up until the past 6 months, never needed to use anything more than atarax(hydroxazine) and pyridim along side my extended release medication.  So I thought due to my recent need for one I would post a bunch that I knew of. I’m sure there are handfuls of medications they have found to improve chronic pain but I honestly only know of the ones my DR and I have spoken about. 

Remember I’m not a medical professional these are only to be used for general knowlege NOT without a DR.

Of course the favorite of Dr’s who treat IC…


This medication is an antihistamine and is also used in treating mild anxiety. It effects mast cell degranulation which is thought to contribute to IC symptoms. It can help to decrease night time voiding. daytime frequency and decrease pain.

I personally really like this medication but it can make you drowsy so it can take a bit of time to adjust. I say worth the wait and extra naps!

An oldie but a goodie is Pyridim:

Which is uaually used to treat the pain and burning sensation that accompanies UTI’s. This is the medication that turns Urine orange. It is good at helping to keep bladder spasms and urethra pain with IC controlled during a flare or particularly bad day.

Although this is non narcotic, I believe there is a pyridim which does include a sedative. Dont qoute me on that. It’s what I have heard as I have never tried it.

Tricyclic Anti-Depressants:

These medicines when being used for IC are not being used to treat depression. The side effects of these medications may actually be beneficial to us IC’ers.  There used in smaller amounts to treat pain and work by blocking the bladder pain. They dont know how it works exactly.  These medicines can

relaz the bladder and dcrease the severity of bladder spasms, cause an antihistamine property with the sedating side effect of the medicine, delay the desire to urinate and block certain nuerotransmitters which cause the brain to disregard pain signals.

Then there are options like Anticonvulsants

Anticonvulsants have been used for pain for a long time. There said to help relieve nueropathic pain(nerve pain) While some anticonvulsants arent narcotic other like Klonopin are.

I have tried Topamax but had a bit of an unplesant side effect when my eye lids began to spasm. Not fatal but not really something you can handle for more than a few seconds at a time.

There is some information pertaining to muscle relaxants, but not the type I was expecting to see. I expected to see something like Soma. The listed medications were more like Atavan and valium. I have never tried anything like Soma for my pain. The bladder is a muscle.  I do wonder what a muscle relaxant like soma would do for IC.  I’ll try to research that more.

These are the medications that I know of that are non-narcotic and must be prescribed by a DR. There are some others listed on the ICN network web site where I got all the exact information for these meds but I am not familiar with them at all so will wait to learn a bit more before I add them.

I also will post some of the over the counter medication available which is known to help IC symptoms.


Been a While!

Posted in I'm Baaack! on June 4, 2008 by icangel

For quite a while I couldnt find my password and the new one wasnt working so I couldnt long on.

It was awful not being able to blog away my days. Funny how attached you get to your laptop or computer!

   So what is new?? I have stopped the Heperin Installments. They just got too painful and became more trouble than I could deal with for a while. On ocassion my Uro sneaks one up on me. I agree if I have nothing to do for the day but dont really get much breakthrough medication so try to avoid seeing my Uro on days I actually have a glimmer of a normal life.

     My pain has been pretty bad these days. I have gone through tons of medication options and nothing has really helped much. My Pain management Dr and I agreed that raising my extended release medication wouldnt be a good option so am searching for way to medicate the pain in non-narcotic ways.  I’ll post alot of the non-narcotic options for pain management a bit later on.

  My pain management Dr also suggested I see a therapist to deal with the psychological effects of dealing with chronic pain. Although I have been avoiding it, I know its a good idea. She has been after me to do it for about a year(maybe more) I know I get down much easier than I used to and have had a hard time adjusting to life without all the physical activity I used to be able to do. My pain doc also says that because I’m so sensative to medictions she would prefer to have those non-narcotic meds that are known to improve nerve pain like anti-depressants and anti-convulsants br prescribed by someone who specializes in them. Makes sense. Psychiatrists do specialize in psychotropics.

 When she stronly(very stongly..) suggested this a few weeks ago, I found that I got insulted. I know that she doesnt think I’m crazy or that my pain is psychosematic, but I still had this bubble of insecurity rise up and before I knew it I was saying things to her like…my pain isnt all in my head, I’m not crazy!  My Dr being very comapssionate and understanding only reassured me that she knew my pain was real which was why she was giving me such string medication in the first place.  But usually I wouldnt have reacted in that way so I guess it is time to talk to someone about depression and stress.

  I have been to therapy before…I am an american afterall.  But I also work in the field and hate admitting that I need help. You would think it was easier…Nope. Shame on me for that.

   So here I am at home on the couch for the uptenth day in a row. 3am, cant sleep and hanging out on the internet like its my only friend in the world.

 I have started visiting a health forum and although I dont post much about myself I like to help other people on it….come to think about it, I really dont post too much stuff about my day to day life even in my own blog. I should turn over a new leaf. It’s not as if I have to start revealing deep dark secrets although this blog would proabably get really popular pretty quick!  I did notice that my blog has been viewed 66 times(woohoo) now depending on how much of that is family checking up on me I have no idea.  But regardless thanks to anyone for paying even a minute amount of attention to my world! I also apologize to those who read it as I am a terrible typist and constantly misspell words and put marks where they dont belong.

  What prompted me to stop at nothing to get access to my blog again is that the medical forum I like to hang out on just started a new forum for Interstitial Cystitis. It is a forum that consists of a DR to answere questions so its not really for getting to know others with IC, but its a start. I thought maybe my blog will make a difference to someone who comes along. And if there is someone who can identify with anything or know there not alone, than it is worth keeping up with.

 Hopefully I can begin as much as possible again as I have learned alot of new information on not only IC but on pain management and the problems surrounding us with the management on pain.

  So for now…I will be making an appointment for someone to shrink my head and prescribe yet another pill that will supposibly help with the nereve pain in the bladder. I guess you can say that pain does come from the head in a way if you can take a medication that helps block the brain from sending a pain message to the nerves. Not sure that is the exact way it works but I know it is along similar lines.